CAREGIVING: It seems like another week has slipped by but maybe that’s a good thing. No major calamities but there is always stuff to work on. I installed another grab bar in the living room. And I put away the rest of the Christmas stuff. One important thing is I’ll be adjusting Kathy’s meds this week. I always keep a… Read more →
Under the covers
MUSIC: I’ve been away from the blog for a few days. Mostly I’ve been busy with other stuff. And at night I am trying to get caught up with some music production loose ends. There are always a lot of them for me. I am never satisfied with a mix or a performance. Songs are really organic beings that sound… Read more →
Out in the cold
CAREGIVING: As expected our services from the VNA stopped this week. Melissa’s last visit came Tuesday morning when she gave Kathy her shower and Brooke came that afternoon. Next week I’ll call Greater Springfield Seniors to see if we can get more help. I’m just not sure what will help the most. I’ve been a little overwhelmed by everything lately,… Read more →
Once you have seen one person with HD…
CAREGIVING: Happy New Years Eve, so far. I just joined an online Huntington’s Disease Caregiving support group and a post from one of the members brought back a lot of memories about life with a pHD (that’s our code for “person with Huntington’s Disease”). “I seldom post, but have been a member for several years. I do read most everything.… Read more →
Don’t Be Discouraged
MUSIC: After hearing and loving “From a Distance” by Julie Gold as sung by Nanci Griffith, I started out trying to write a positive, optimistic, uplifting song. This is background music to play while you are reading my last few caregiving blurbs. I failed. Sorry. This version of Don’t Be Discouraged was recorded in GarageBand, then brought into Logic. I created… Read more →
Saturday: A reason to skip…
CAREGIVING: Kathy is sleeping after breakfast. I made pancakes with some butternut squash leftover from Christmas dinner. When she was swallowing the last bite she sneezed and that made her inhale a particle of food. She had a short choking episode but she coughed it up. Later, while I was in the basement “doing laundry” I ran out to the… Read more →
’twas the Day After Christmas
CAREGIVING: I am one of those “Glass is rather large for its contents” people. I’m generally cautiously pessimistic. Things go right and wrong, so I try to be prepared. Today Brooke, the nurse from the VNA, came for her weekly visit. She said that no further services would be authorized by Kathy’s health insurance after January 2nd. I’m not totally… Read more →