A quick update on my ‘pharmaceutical research’ from last night’s post: Today I tried skipping the Zanaflex (muscle-relaxant) to see if Kathy did a little better. She was not as weak and seemed to be able to follow my lead and moved pretty well. I was unable to get a blood pressure reading though because her arms and hands were… Read more →
Experimenting with Drugs
CAREGIVING: I have been experimenting with drugs. No, I’m not taking recreational drugs. I’ve been attempting to dial back some of the meds I have been giving Kathy for her Huntington’s and her blood pressure. My concern and actually the concern of her doctors is that her blood pressure may be getting too low. I’m thinking (always dangerous, I know)… Read more →
Shopping: Peapod for Caregivers
CAREGIVING: I would like to make grocery shopping less of a pain in the ass. There I said it. I actually like shopping and meal planning and cooking. But it is a major production when Kathy goes with me. Getting a Huntington’s disease patient back into the house when she is exhausted and bent over is pretty scary. I decided to… Read more →
Spring is around the corner
LIFE: Marty keeps telling me Spring is around the corner but, like his Kong toy, we aren’t sure which corner. We have had little teasers of warmth and I believe there are some daffodils trying to poke through the leaves that I never got around to raking. Last spring even though Kathy could no longer help, I still managed to… Read more →
Visit to the Huntington’s clinic
CAREGIVING: Wednesday I took Kathy down to the UConn Health Center for her six month checkup at the Huntington’s Clinic. (This is the same clinic I donate all of my proceeds from music downloads hint/hint/hint). Originally our appointment was to be at 2 pm but I got them to move it to noon. I figured we could avoid some of… Read more →
Update: A Close Call
CAREGIVING: My last post (about Kathy collapsing in the basement) received a lot of attention from my friends on Facebook and I wanted to thank anyone who reads these things. I have been writing these posts as a diary to help me remember one day, or one week, from the next. I’m grateful for all the support I have. Thanks.… Read more →
A Close Call
CAREGIVING: Tonight was about as rough as they’ve come. (So far.) Kathy is in bed with her clothes still on. But we are fortunate we got her there and didn’t need an ambulance or the police. Today we had our annual eye checkups at Pioneer Valley Eye Associates. We have been going to that office at Holyoke Medical Center for years.… Read more →