It has been over a week since Kathy passed away. I marked the actual time by having a glass of her wine out on our deck with Marty, my basset sitting on my feet. Don’t worry it was a small glass of wine. Marty and I had just finished mowing the leaves. Again. The leaves seem to keep falling whether… Read more →
Tag: UConn
Second thoughts; and third ones too
CAREGIVING: This week was another wild ride emotionally. The big debate was whether Kathy should be taken to the hospital. I was having second thoughts and third thoughts and more. I mean, it isn’t like it is life or death… Oh, wait it is. These are tough decisions, and probably some of the toughest ones you and I have to… Read more →
Pre-planning and Huntington’s Disease
CAREGIVING: I spent some of my birthday looking into funeral and cremation options for Kathy. It’s not something we want to think about or plan for. When I was a kid one of my friends lived in a funeral home. His mom and dad ran a funeral home in Fitchburg MA. I remember when he had a birthday party we went… Read more →
When I’m 64
LIFE: On February 17th I turned 64. I’ve been waiting for that one Beatles song “When I’m 64” to actually apply to me. And I forgot about it: aka “senior moment.” Fortunately all of my friends on Facebook remembered it for me. Thanks to all of you, my friends and fauxs. Life never turns out exactly the way you imagined it… Read more →
Day One: Roster Changes
Wednesday, the primary care team came from NaviCare, Kathy’s new health plan. (See my previous post about it). It was day one of coverage. Miguel is our Navigator (commercial pun intended). He will be the main contact: getting any approvals for this and that, and he will make Kathy’s first appointment with her new doctor. He will get any needed authorizations for ambulance rides to her doctor and dentist appointments. And… Read more →
Gratitude to my friends
CAREGIVING & MUSIC: I wish I could reach out and give a virtual hug to everyone who is supporting us during our time with Huntington’s Disease. We had a very very successful benefit concert in Amherst thanks to the organizational efforts of Mike and Chris Orlen. Volunteers and donors from all over the Pioneer Valley pitched in to help. I… Read more →
Kathy’s Benefit
MUSIC: There are many people who could not get to the benefit concert in Amherst or were not free to watch on ConcertWindow as it was happening. It was a huge success and I was humbled by the love for Kathy that was shown and the respect that was shown for my caregiving. I’ll talk more about the benefit, what happened and… Read more →