Writing. There are a number of reasons to keep a journal or to write stuff down. In the beginning, it was simply to remember what or when something happened. In my case, it really helps me process complicated feelings and to remember what I/we went through. When I stopped writing regularly I found myself being in a crappy mood every once… Read more →
Tag: Huntington’s Disease
Exhibiting progress: Save a new date
I had arranged for a show of Kathy’s artwork in September to be the Wilbraham Library, several months ago. I had decided to hold the reception in the middle of the month. With the Labor Day weekend, people would have family and vacation conflicts. And September 16 would have been her 69th birthday. So, I reserved the room for a Sunday but didn’t… Read more →
Hello
Hello and Welcome. This blog started out a few years ago as a journal. It helped me process what was going on in my life as a caregiver, artist, and as a musician. My personal goal was to be able to remember what happened, when. As my wife, Kathy declined from Huntington’s Disease, I wanted to share what was happening… Read more →
Cough. I think I’ve got it
I’m gradually getting over a bout of bronchitis. I managed to skip over the typical cold and went right to a cough. Or something like that. I know exactly when and where I caught “it” too. March 7. I went over to my friend Charlie’s house to practice for our open mic outings. He said he felt like he was… Read more →
Open Mic Therapy Tour: So Far, So Good.
Music: I have found that music is my medicine. It makes me feel better. And being in front of an audience is wonderful. I still have a long way to go to get my performance skills up to the level I want. But, it is fun getting there. Happy Birthday: My friend Charlie and I went to the Luthier’s open mic… Read more →
Camera ghosts on Valentine’s Day
The Big Freeze. I spent a good part of Valentines Day thawing out my pipes. I am referring to my house plumbing, not my human plumbing. But, It was so cold out that when I had to go out to get Marty some dog food I had to keep on checking whether my fly was down. Maybe I am exaggerating… Read more →
Reno / Part 3: Visiting Kathy’s sister LouAnn
A few days before I returned home I used Barbara’s car to visit Kathy’s sister, LouAnn in Grass Valley CA. It is about a two-hour drive over the mountains and past Lake Tahoe. LouAnn has Huntington’s Disease. I almost wrote the phrase ‘just like Kathy.’ But, it’s not the same. While there are a lot of similarities in HD patients,… Read more →