CAREGIVING: I would like to make grocery shopping less of a pain in the ass. There I said it. I actually like shopping and meal planning and cooking. But it is a major production when Kathy goes with me. Getting a Huntington’s disease patient back into the house when she is exhausted and bent over is pretty scary. I decided to… Read more →
Tag: Huntington’s Disease
Spring is around the corner
LIFE: Marty keeps telling me Spring is around the corner but, like his Kong toy, we aren’t sure which corner. We have had little teasers of warmth and I believe there are some daffodils trying to poke through the leaves that I never got around to raking. Last spring even though Kathy could no longer help, I still managed to… Read more →
Visit to the Huntington’s clinic
CAREGIVING: Wednesday I took Kathy down to the UConn Health Center for her six month checkup at the Huntington’s Clinic. (This is the same clinic I donate all of my proceeds from music downloads hint/hint/hint). Originally our appointment was to be at 2 pm but I got them to move it to noon. I figured we could avoid some of… Read more →
Update: A Close Call
CAREGIVING: My last post (about Kathy collapsing in the basement) received a lot of attention from my friends on Facebook and I wanted to thank anyone who reads these things. I have been writing these posts as a diary to help me remember one day, or one week, from the next. I’m grateful for all the support I have. Thanks.… Read more →
A Close Call
CAREGIVING: Tonight was about as rough as they’ve come. (So far.) Kathy is in bed with her clothes still on. But we are fortunate we got her there and didn’t need an ambulance or the police. Today we had our annual eye checkups at Pioneer Valley Eye Associates. We have been going to that office at Holyoke Medical Center for years.… Read more →
A Caregiver Cam
CAREGIVING: This week I bought a caregiver cam. That’s what I am calling it, anyway. Everybody is spying on everybody. A musician friend gave me an Amazon gift card and in addition to some pajama bottoms for Kathy and some Oral-B toothbrush heads, I ordered an inexpensive internet camera. It is like a web cam except that it works with… Read more →
Shop til I drop
CAREGIVING: Trying to do grocery shopping on Sunday was hopeless. Kathy was a zombie for some reason. Some days are like that. (Hell, I’m like that some days.) It could have been the new meds which I was hoping would help with the shaking in her hands. (No improvement, so far.) But basically she woke up Sunday morning. I helped… Read more →