HOSPITAL / May 28th: Wednesday and Thursday were whirlwind days at Baystate. Because it was cool out I brought Marty with me. I parked in garages both days so he was safe and I could go out and we would go for sniff and pee walks. Well I drank a coffee. Marty did his thing. I contacted our dog sitter Joanne and… Read more →
Tag: Huntington’s Disease
9-1-1
CAREGIVING: I’m writing this from Kathy’s hospital room. On Tuesday we got up as usual and Kathy was coughing and couldn’t really eat or drink much of anything. I had figured out that I could get her to take her meds by breaking them up into small pieces and putting them in a little applesauce. Unfortunately the combination of insufficient fluids,… Read more →
Memorial Day Parade in Hampden
LIFE: There are very few advantages to having a house a foot and a half from Main Street. In fact, according to a recent survey we did, our porch is not even on our property. The porch does give us a reviewing stand for the Town of Hampden Memorial Day Parade — our big event. The parade always departs the Catholic church parking… Read more →
Woody Guthrie at Greystone
MUSIC: This is an interesting short film about Woody Guthrie’s years with Huntington’s Disease, when he was a patient at Greystone Park Psychiatric Hospital in Morris Plains, New Jersey. He was picked up by the police and misdiagnosed as having schizophrenia. A similar diagnosis was given to Kathy’s mom in Florida, but at least in Woody’s case they figured out it was… Read more →
and Two Steps Back
CAREGIVING: It’s Friday night, and I finally can sit and try to get caught up a bit. Kathy is asleep — breathing well with the occasional cough. Marty is on his couch. I’m on mine. It is thundering out and pouring rain. One of the main reasons I feel a need to write this stuff down is that time flies – whether you… Read more →
Two Steps Sideways….
Saturday and Sunday seem normal (looking back from Tuesday at least.) Normal is a relative term around here. Saturday morning I got Kathy up, we danced to the commode and I cleaned her up. Really it was just changing a depends. I made her some french toast and she ate a slice or two. Pat came around noon and gave her a thorough bed bath. I… Read more →
The Legend of Sleepy Swallow
I guess I don’t need to put CAREGIVING: at the start of my posts now. It is all caregiving for the moment. Music is still there. I practice guitar some before I go to bed and have been working on a few songs. That process keeps a melody in my head during the day as I try to find words that rhyme… Read more →