CAREGIVING: It seems like another week has slipped by but maybe that’s a good thing. No major calamities but there is always stuff to work on. I installed another grab bar in the living room. And I put away the rest of the Christmas stuff. One important thing is I’ll be adjusting Kathy’s meds this week. I always keep a… Read more →
Tag: drugs
Once you have seen one person with HD…
CAREGIVING: Happy New Years Eve, so far. I just joined an online Huntington’s Disease Caregiving support group and a post from one of the members brought back a lot of memories about life with a pHD (that’s our code for “person with Huntington’s Disease”). “I seldom post, but have been a member for several years. I do read most everything.… Read more →
Tough Pills to Swallow
CAREGIVING: One part of Kathy’s Huntington’s Disease that is a constant battle is choking and swallowing problems. Actually Aspiration Pneumonia is the most common complication that results in death in late stage HD. Patients get a fatal infection from unintentionally inhaling a piece of food. ¹ Kathy is still middle stage (more or less) but it is still scary. The biggest problem… Read more →
Check-up and Cooking with Su
CAREGIVING: Wednesday Kathy has a check-up at her doctor’s office. I got her up a little too late. It takes so long to do things, and get places. A step for you and I might cover 10 or 12 inches. But it is a lot of effort for Kathy’s foot to move 1/4 of an inch most days. I gave her… Read more →
Thanksgiving
CAREGIVING: Well we had a very nice day. Kathy was feeling a little better. I was able to give her a shower. She slept while I cooked. I baked chocolate chip cookies that were supposed to be healthier. The recipe replaced some of the butter with tahini and I replaced part of the sugar with splenda. So I made them… Read more →
The United Nations of health aides
CAREGIVING: Tuesday morning Melissa, an aide from the VNA came to give Kathy a shower and help her get dressed. She comes twice a week, the other days I take care of the showers etc. and all the personal care stuff. I had Melissa wear a mask while she was here so she wouldn’t get whatever it was. We decided… Read more →
I Think I’ve Got It
Originally posted on OpenSalon.com March 12, 2011 MUSIC: In my day job a do a lot of graphic work for health care providers, like doctors and hospitals. I do ads and brochures and logos. But I am also really interested in health, wellness, and medicine. And health reform. My dad was a doctor and my mom was a nurse, so… Read more →