CAREGIVING: After Kathy’s appointment with Dr. Jackson a lot of ‘stuff’ has started happening. Or not, depending on how you look at it. A referral call was made to Baystate Hospice. The nurse left a message and was going to come over to do the intake. I called her back and told her that we were requesting palliative care, first. Also I told her,… Read more →
Tag: drugs
the Followup Visit and other news
CAREGIVING: Yesterday was Kathy’s followup visit with Dr. Jackson, her new primary doctor at Riverbend. The ambulance guys arrived on time. It was drizzling a little. I guess the ambulances are all equipped differently. This one used a tiny “stair chair” that looked more like an uncomfortable beach chair than medical equipment. It was similar to this blue one except I… Read more →
Infographic: Huntington’s Disease
I wanted to share a good infographic produced by Lundbeck, one of the pharmaceutical companies working on treatments for Huntington’s Disease. I am not sure what the log has to do with it. Read more →
Friday: I can’t complain
LIFE & CAREGIVING: Today, was one of those days. But I can’t complain. The clothes dryer died: I suppose it was due. We bought it in 1994. So, I can’t complain. I ran to the Depot and bought the same basic Whirlpool we had. Looks more streamlined, but it is the same basic box. Made in the USA, of all places. Unfortunately, they can’t deliver… Read more →
Some Updates
CAREGIVING: Today was “Columbus Day” here. Even though I am half Italian I don’t think Columbus warrants his own day for getting here after everybody else. I didn’t get the day off. Updates: Kathy seems to be doing pretty well – stable is the term. On Sunday, Pat washed her hair and I gave her a haircut. I clean her teeth twice… Read more →
Update: Club meds
CAREGIVING: Sorry I’ve been scarce lately. Some friends have contacted me worried – expecting the worst – because I haven’t been blogging lately. Actually things with Kathy have been OK. There are some rough moments for sure, but overall she seems stable and content. I’ve been adjusting the timing of her meds, so she isn’t quite as sleepy during the day. One of her meds, a… Read more →
Getting back into a schedule
CAREGIVING: The following few weeks in June had their ups and downs but at least it wasn’t the roller coaster that it was when Kathy was in the hospital. There is a routine that we got into and although there are always changes and tweaks, a schedule helps a Huntington’s Disease patient. It is one less thing to get anxious about,… Read more →