Tag: drugs

Reno / part 1: Hip hooray

Caregiving: I just got back from Reno on Tuesday, so I am still catching up with stuff. I was there for a week or so to help my sister Barbara recover from hip replacement surgery. There were a few moments when I started to wonder what they replaced it with. (Used parts?) But she is progressing really well, now. I was… Read more →

Finding a routine

I’m starting to think I have too many lists going. I need to list my lists. I use ‘Google Keep’ for some memos. But then I have a series of ‘Google Drive’ spreadsheets to remember my design projects and another for paying bills. ‘Google Keep’ is nice because it is synchronized on my phone, and on my computer. The problem… Read more →

House Call: Back from the Hospital

CAREGIVING:  Last Thursday my main task was to get Kathy back on hospice again. Because she went to the hospital for a procedure to “extend her life” – the feeding tube – she had to be discharged from Mercy Hospice. Now that she was back home she could be readmitted to hospice. I had called the hospice to let them… Read more →

Second thoughts; and third ones too

CAREGIVING:  This week was another wild ride emotionally. The big debate was whether Kathy should be taken to the hospital. I was having second thoughts and third thoughts and more. I mean, it isn’t like it is life or death…  Oh, wait it is. These are tough decisions, and probably some of the toughest ones you and I have to… Read more →

Declining? (Part 2)

CAREGIVING: When we last checked in I was told Kathy was “declining.” That episode was probably related to medication issues – Atropine, in particular. By the next nursing visit, her vitals were pretty good. Unfortunately, caregiving is a rollercoaster. What goes up doesn’t keep going up. Each up is lower than the last up. You are lucky if you level out for a day. Or… Read more →

Medicine for Phlemergencies: Plan B

CAREGIVING:  A few weeks ago we noticed Kathy’s blood pressure was running very low. So, it seemed logical that we should cut back her blood pressure medicine (Propranolol). We were also adjusting some of her other meds. Scopolamine redo: Kathy’s coughing and lung secretions seem to be bothering her more. It is very common in late-stage Huntington’s Disease. One of her nurses suggested giving the Scopolamine Patch another… Read more →

Feeding tube: plumbing hacks

CAREGIVING:  Last week Kathy’s feeding tube started acting up. Well, actually it has been a gradual thing. A few months ago I noticed the purple plug end of the tubing (coming from the feeding bag) was slipping out of her stomach port. I fixed that by lightly roughing-up the plug of each bag with a little piece of sandpaper. It is just enough to grip it… Read more →