LIFE: Today Kathy and I went out to lunch. To the average person, going out to eat is no big deal. But when you are taking care of someone with Huntington’s or dementia or any number of conditions, going out might be a challenge. Part of it is just fear of the unknown: Will feeding an adult in public make… Read more →
Category: Life
Out in the cold
CAREGIVING: As expected our services from the VNA stopped this week. Melissa’s last visit came Tuesday morning when she gave Kathy her shower and Brooke came that afternoon. Next week I’ll call Greater Springfield Seniors to see if we can get more help. I’m just not sure what will help the most. I’ve been a little overwhelmed by everything lately,… Read more →
Once you have seen one person with HD…
CAREGIVING: Happy New Years Eve, so far. I just joined an online Huntington’s Disease Caregiving support group and a post from one of the members brought back a lot of memories about life with a pHD (that’s our code for “person with Huntington’s Disease”). “I seldom post, but have been a member for several years. I do read most everything.… Read more →
Balancing Act
CAREGIVING: Christmas Eve. Well I managed to get Kathy into her Christmas pajamas and into bed, but once again it was touch and go. I guess touch and stumble is more like it. She didn’t fall but it takes all of our collective strength to keep her upright and somewhat mobile. She does better when she gets plenty of resting… Read more →
Snow Phobia
LIFE: Even when we were both healthy, the winters were rough at our house. Since the house is so close to the road, the plows push the snow on to our porch and bury our car. I should rephrase that: The road is so close to the house. Since the house has been there since the Civil War the road… Read more →
Snow is a four letter word.
CAREGIVING: Friday. I decided that, with the first snowstorm of the winter on its way, we would go shopping on Friday and not our usual Sunday routine. I’m also realizing that taking Kathy out is getting more and more difficult. And with her coughing we need to be careful. Friday it was cold but it was sunny out, so we… Read more →
Saturday: Lists of Lists
LIFE: Today started out pretty normal. Saturday is my work-around-the-house day. I have lists of lists of tasks I have no hope of finishing. Today’s list included: Go to the Dump / transfer station. Bring two weeks worth of trash and recycling to the town transfer station Do the laundry and change the sheets on the bed. Water the plants (on… Read more →