Writing. There are a number of reasons to keep a journal or to write stuff down. In the beginning, it was simply to remember what or when something happened. In my case, it really helps me process complicated feelings and to remember what I/we went through. When I stopped writing regularly I found myself being in a crappy mood every once… Read more →
Tag: religion
Reno / Part 3: Visiting Kathy’s sister LouAnn
A few days before I returned home I used Barbara’s car to visit Kathy’s sister, LouAnn in Grass Valley CA. It is about a two-hour drive over the mountains and past Lake Tahoe. LouAnn has Huntington’s Disease. I almost wrote the phrase ‘just like Kathy.’ But, it’s not the same. While there are a lot of similarities in HD patients,… Read more →
Friday and Saturday: undertakings
Friday, October 16, 2015 Last Friday was the day I had to go to the funeral home to sign some forms. I decided to take Marty with me so I could give him a few little walks and I wanted to stop by the Wilbraham Library on my way home to ask about having Kathy’s celebration there. The funeral home… Read more →
Pre-planning and Huntington’s Disease
CAREGIVING: I spent some of my birthday looking into funeral and cremation options for Kathy. It’s not something we want to think about or plan for. When I was a kid one of my friends lived in a funeral home. His mom and dad ran a funeral home in Fitchburg MA. I remember when he had a birthday party we went… Read more →
When I’m 64
LIFE: On February 17th I turned 64. I’ve been waiting for that one Beatles song “When I’m 64” to actually apply to me. And I forgot about it: aka “senior moment.” Fortunately all of my friends on Facebook remembered it for me. Thanks to all of you, my friends and fauxs. Life never turns out exactly the way you imagined it… Read more →
Update on the Cheek
CAREGIVING: I guess after Kathy’s most recent close call we all deserve an update. She is doing much, much better. The antibiotics did their job and her cheek went from grapefruit sized down to normal. Now we wait to see if the same infection comes back. I did learn a lot from the process. For one thing, just because you are… Read more →
Things are swell.
CAREGIVING: The goal with our hospice care is to keep Kathy comfortable. Hospice care (from a health care cost standpoint) is limited to Kathy’s actual “diagnosis” of end stage Huntington’s Disease. When something else pops up (blood pressure, infections etc.) there are “conversations” about what to do next. Or not. They will support whatever decision I make. But I have to make decisions on how far to… Read more →