CAREGIVING: I’m writing this from Kathy’s hospital room. On Tuesday we got up as usual and Kathy was coughing and couldn’t really eat or drink much of anything. I had figured out that I could get her to take her meds by breaking them up into small pieces and putting them in a little applesauce. Unfortunately the combination of insufficient fluids,… Read more →
Tag: medicine
Woody Guthrie at Greystone
MUSIC: This is an interesting short film about Woody Guthrie’s years with Huntington’s Disease, when he was a patient at Greystone Park Psychiatric Hospital in Morris Plains, New Jersey. He was picked up by the police and misdiagnosed as having schizophrenia. A similar diagnosis was given to Kathy’s mom in Florida, but at least in Woody’s case they figured out it was… Read more →
and Two Steps Back
CAREGIVING: It’s Friday night, and I finally can sit and try to get caught up a bit. Kathy is asleep — breathing well with the occasional cough. Marty is on his couch. I’m on mine. It is thundering out and pouring rain. One of the main reasons I feel a need to write this stuff down is that time flies – whether you… Read more →
Weekend, Weakened, Weak end
CAREGIVING: Thursday was forgettable, but in a good way. I can’t remember any major problems at least. Dilcia got confused about what day it was and forgot to come. I had planned to run to Stop & Shop to pick up Kathy’s refill of the Scopolamine patches but it could wait until Friday. I placed an order with Peapod so that Kathy would… Read more →
Hospice? Not so fast after all
CAREGIVING: Tuesday had been an emotional ride, what with Erica saying it was probably hospice-time; and realizing that Kathy was making her own decisions quite well. On Wednesday Hope came to give Kathy her shower and stay with her. Monday had been too tough for Kathy so she gave her a sponge bath.She really was due for a full shower.… Read more →
“You are there.” The Truth Is Tough to Swallow
CAREGIVING: Erica the speech therapist came for another visit to check Kathy’s swallowing on Tuesday (4/29). It was one of Kathy’s bad days. There was more congestion from fluid, and we made the mistake of testing her swallowing while she was lounging on the futon. Her body was not in the best position. We had already eaten breakfast so Kathy was already… Read more →
New wheels
CAREGIVING: On Thursday Bob our new physical therapist came with a wheelchair expert named John to assess and hopefully get us a new chair for Kathy. The idea will be to convince Medicare, MassHealth (Medicaid) and probably Health New England (her Medicare Advantage plan) that it is a necessary piece of equipment due to her Huntington’s Disease. Best case is… Read more →