CAREGIVING: Thursday morning, Kathy had a follow-up visit with Dr. Dourantes, her primary doc. This was the first time in a week or so that Kathy had been out because of all the snow. I still had the car parked down the street. I went and got the car. Getting her and her chair into the car was a challenge… Read more →
Tag: Huntington’s Disease
If It’s Wednesday This Must Be…
CAREGIVING: I have actually been trying to write a song but this will be a tale about health aides. The word tale slipped out there but I think I’ll leave it since it beats me how all this state health assistance works. I keep thinking I understand the process and the terminology and rules but I only know what I… Read more →
Sleeping in the Dining Room
LIFE & CAREGIVING: I’ve had some photos of how I adapted the dining room into a safe bedroom for Kathy and I thought I would share them. Once it was clear that Kathy had Huntington’s I knew that I would have to start making adaptations like more hand rails and things. As she started getting more and more unsteady on… Read more →
Belated Valentines: definition of love
CAREGIVING: I read an amusing definition of love today. It was on the internet Huntington’s Disease caregivers support group I belong to. And it seems to apply to many people trying to take care of irritable loved ones. Love is when you are willing to give your life….. to save the life… of someone you want to kill. It doesn’t… Read more →
It’s snow fun
CAREGIVING: We had a pretty good-sized snow storm on Thursday. I cancelled our aide Dilcia because I knew there was no place for her to park. Greater Springfield Seniors wanted to send a nurse to help develop the new treatment plan for Kathy. She will be getting more help with showers and companion care. The nurse had already postponed until… Read more →
A visit from the copyright police
MUSIC: I admit it. I have always been paranoid about recording “covers” of other people’s songs. Unless you have permission in writing; or have paid a licensing fee to do them; there is always a chance that someone will complain. Or worse. The copyright police will come for you. That is one good reason why I write my own songs.… Read more →
If you should fall, I’ll be there – Floor
CAREGIVING: Falls are one of the greatest risks with Huntington’s Disease. Kathy’s balance was actually pretty decent up until a few months ago. Now her legs are getting rigid and her feet don’t seem to want to move – let alone take an actual step. Sunday and Monday she had some spills that were really my fault. The biggest problem seems… Read more →