Tag: Huntington’s Disease

Luck Happens: Why I Feel Lucky

LIFE: We all know how “stuff happens”; or “life happens” and of course shit does indeed happen – to all of us. “Luck Happens” My guess is that most of us have some periods of good luck. Those are followed by bad luck. And it keeps repeating like biorhythms. How we respond to them determines what could happen next. That is how we evolve as people.… Read more →

Sunday: More updates

CAREGIVING: I am starting this late Sunday night. Kathy had a less than perfect weekend. There were enough coughing spells and suctioning episodes, that I didn’t feel comfortable being too far away. I also assumed that the leaves aren’t going anywhere. They can wait. On Saturday, Kathy was actually coughing hard enough for some blood to come up. The first time… Read more →

Friday Updates: Kathy

CAREGIVING:  There have been a lot of changes around here. I should probably write them down before I disremember them. I got a little sidetracked by those ladybugs trying to find a warm home for the winter (Kathy’s lungs). First things first. Kathy is still doing OK. No major changes. Our new visiting nurse feels like everyone is doing a good job.… Read more →

Meet the Beetles

LIFE: When you live in an old drafty house you never know who’s going to drop in for a visit. We have had visits by mice; and flying squirrels. If our walls were glass or clear plastic, it would look like a huge ant farm in the walls. Last week we had the annual October infestation of Asian lady beetles. When… Read more →

Some Updates

CAREGIVING: Today was “Columbus Day” here. Even though I am half Italian I don’t think Columbus warrants his own day for getting here after everybody else. I didn’t get the day off. Updates: Kathy seems to be doing pretty well – stable is the term. On Sunday, Pat washed her hair and I gave her a haircut. I clean her teeth twice… Read more →

The Stairlift has left the building

CAREGIVING:  This is a story about how you think you have a plan, but a much simpler one is “stairing” you in the face. I have been paranoid about the combination of caregiving and winter in this house. Now that Kathy is bed-bound with Huntington’s Disease, keeping her warm and safe is another thing to worry about.  Just as a refresher, our house… Read more →

Project: Man-cave

LIFE: I have always joked about my working arrangements. I have posted on Facebook that “Due to the snow emergency, Lehndorff Design will be closing early.” As a self-employed graphic designer, my hours can be long but the commute is easy. With caregiving I need to keep even closer. It has been months since I used my “office” upstairs. My latest ongoing project: to… Read more →