CAREGIVING: Well, we had another episode of buckling today. I thought I had it all figured out: how to get Kathy out into the car and back into the house using the wheelchair. We had to go pick up some prescriptions at Stop & Shop and since it was really nice out I thought I would go today and bring… Read more →
Tag: Hampden Massacusetts
Spring is around the corner
LIFE: Marty keeps telling me Spring is around the corner but, like his Kong toy, we aren’t sure which corner. We have had little teasers of warmth and I believe there are some daffodils trying to poke through the leaves that I never got around to raking. Last spring even though Kathy could no longer help, I still managed to… Read more →
Sleeping in the Dining Room
LIFE & CAREGIVING: I’ve had some photos of how I adapted the dining room into a safe bedroom for Kathy and I thought I would share them. Once it was clear that Kathy had Huntington’s I knew that I would have to start making adaptations like more hand rails and things. As she started getting more and more unsteady on… Read more →
It’s snow fun
CAREGIVING: We had a pretty good-sized snow storm on Thursday. I cancelled our aide Dilcia because I knew there was no place for her to park. Greater Springfield Seniors wanted to send a nurse to help develop the new treatment plan for Kathy. She will be getting more help with showers and companion care. The nurse had already postponed until… Read more →
Help, Help Me Jennifer
CAREGIVING: I remember back when Kathy was getting help from the VNA and health aides from the two agencies, I joked that “The cavalry had arrived.” I was worried about parking logistics during the winter. Should I finally get a snow blower? Should I park my car at the neighbor’s house? At the beginning, we had two nursing visits a… Read more →
Once you have seen one person with HD…
CAREGIVING: Happy New Years Eve, so far. I just joined an online Huntington’s Disease Caregiving support group and a post from one of the members brought back a lot of memories about life with a pHD (that’s our code for “person with Huntington’s Disease”). “I seldom post, but have been a member for several years. I do read most everything.… Read more →
Saturday: A reason to skip…
CAREGIVING: Kathy is sleeping after breakfast. I made pancakes with some butternut squash leftover from Christmas dinner. When she was swallowing the last bite she sneezed and that made her inhale a particle of food. She had a short choking episode but she coughed it up. Later, while I was in the basement “doing laundry” I ran out to the… Read more →