Caregiving. This is a non-music posting for a change. While my music, open mics, and my design work keep me going, I also try to go to my monthly caregiver support groups. There is a dementia group at my library and a Huntington’s group at UConn. My caregiving days are over, for now. But I like to think I can lend support.… Read more →
Tag: fear
Between
The time between Barbara’s passing and her celebration of life/memorial gave us enough time to plan something nice. But not the time to overthink it. When she was in hospice we were talking about a date in May. But by the time I returned to Hampden the new date was moved up a month to April 2nd. There were emails back and… Read more →
Cough. I think I’ve got it
I’m gradually getting over a bout of bronchitis. I managed to skip over the typical cold and went right to a cough. Or something like that. I know exactly when and where I caught “it” too. March 7. I went over to my friend Charlie’s house to practice for our open mic outings. He said he felt like he was… Read more →
Reno / Part 3: Visiting Kathy’s sister LouAnn
A few days before I returned home I used Barbara’s car to visit Kathy’s sister, LouAnn in Grass Valley CA. It is about a two-hour drive over the mountains and past Lake Tahoe. LouAnn has Huntington’s Disease. I almost wrote the phrase ‘just like Kathy.’ But, it’s not the same. While there are a lot of similarities in HD patients,… Read more →
Second thoughts; and third ones too
CAREGIVING: This week was another wild ride emotionally. The big debate was whether Kathy should be taken to the hospital. I was having second thoughts and third thoughts and more. I mean, it isn’t like it is life or death… Oh, wait it is. These are tough decisions, and probably some of the toughest ones you and I have to… Read more →
When I’m 64
LIFE: On February 17th I turned 64. I’ve been waiting for that one Beatles song “When I’m 64” to actually apply to me. And I forgot about it: aka “senior moment.” Fortunately all of my friends on Facebook remembered it for me. Thanks to all of you, my friends and fauxs. Life never turns out exactly the way you imagined it… Read more →
Part 2: The Social Worker and the Minister
The Social Worker: On Monday Steve the social worker came back. Even though he came for the information session, Medicare requires him to visit as a social worker. Kathy slept through the whole meeting. He complimented me on how well I was taking care of Kathy. I guess we are the talk of the office. I think the key thing is… Read more →