HOSPITAL / May 28th: Wednesday and Thursday were whirlwind days at Baystate. Because it was cool out I brought Marty with me. I parked in garages both days so he was safe and I could go out and we would go for sniff and pee walks. Well I drank a coffee. Marty did his thing. I contacted our dog sitter Joanne and… Read more →
Tag: family
9-1-1
CAREGIVING: I’m writing this from Kathy’s hospital room. On Tuesday we got up as usual and Kathy was coughing and couldn’t really eat or drink much of anything. I had figured out that I could get her to take her meds by breaking them up into small pieces and putting them in a little applesauce. Unfortunately the combination of insufficient fluids,… Read more →
Being your best advocate = squeaky wheel
CAREGIVING: I admit it. I appreciate all the kind comments about what I am doing and how I am doing. I’m grateful for all that support: from my family, Kathy’s family, my Facebook friends, my music friends and the different health aides and nurses the have walked through the door. I appreciate criticism too. Tuesday Kathy was visited by Susanne,… Read more →
Wednesday: The Cavalry Returns
CAREGIVING: Whattaday. Wednesday is usually the day that Hope comes in the morning and stays for over four hours. This gives her more time to give Kathy a shower and then gives me time to get away. I was hoping to go shopping at Aldi’s to stock up on stuff. Things got off to a rocky start. But they ended… Read more →
Five Wishes
CAREGIVING: On Wednesday afternoon after the palliative care nurses left, I went over some more parts of Five Wishes, an advanced directive plan or living will. I’m sure there are a million living-will forms on-line but this is the one I found years ago. At the time that we started this, Kathy had not been diagnosed with Huntington’s Disease although I suspected she… Read more →
Belated Valentines: definition of love
CAREGIVING: I read an amusing definition of love today. It was on the internet Huntington’s Disease caregivers support group I belong to. And it seems to apply to many people trying to take care of irritable loved ones. Love is when you are willing to give your life….. to save the life… of someone you want to kill. It doesn’t… Read more →
A few thoughts on Pete Seeger
MUSIC: Pete Seeger passed away last night. Fortunately he lived long enough to miss the Grammy’s. I hate to think of what they would have done as a tribute to him. A techno, hip-hop, country medley of Pete’s songs. Do we really need a rap version of Where have all the flowers gone? Well played, Pete. I’ve always been a… Read more →