MUSIC: This is an interesting short film about Woody Guthrie’s years with Huntington’s Disease, when he was a patient at Greystone Park Psychiatric Hospital in Morris Plains, New Jersey. He was picked up by the police and misdiagnosed as having schizophrenia. A similar diagnosis was given to Kathy’s mom in Florida, but at least in Woody’s case they figured out it was… Read more →
Category: Caregiving
and Two Steps Back
CAREGIVING: It’s Friday night, and I finally can sit and try to get caught up a bit. Kathy is asleep — breathing well with the occasional cough. Marty is on his couch. I’m on mine. It is thundering out and pouring rain. One of the main reasons I feel a need to write this stuff down is that time flies – whether you… Read more →
Two Steps Sideways….
Saturday and Sunday seem normal (looking back from Tuesday at least.) Normal is a relative term around here. Saturday morning I got Kathy up, we danced to the commode and I cleaned her up. Really it was just changing a depends. I made her some french toast and she ate a slice or two. Pat came around noon and gave her a thorough bed bath. I… Read more →
The Legend of Sleepy Swallow
I guess I don’t need to put CAREGIVING: at the start of my posts now. It is all caregiving for the moment. Music is still there. I practice guitar some before I go to bed and have been working on a few songs. That process keeps a melody in my head during the day as I try to find words that rhyme… Read more →
Being your best advocate = squeaky wheel
CAREGIVING: I admit it. I appreciate all the kind comments about what I am doing and how I am doing. I’m grateful for all that support: from my family, Kathy’s family, my Facebook friends, my music friends and the different health aides and nurses the have walked through the door. I appreciate criticism too. Tuesday Kathy was visited by Susanne,… Read more →
Weekend, Weakened, Weak end
CAREGIVING: Thursday was forgettable, but in a good way. I can’t remember any major problems at least. Dilcia got confused about what day it was and forgot to come. I had planned to run to Stop & Shop to pick up Kathy’s refill of the Scopolamine patches but it could wait until Friday. I placed an order with Peapod so that Kathy would… Read more →
Wednesday: The Cavalry Returns
CAREGIVING: Whattaday. Wednesday is usually the day that Hope comes in the morning and stays for over four hours. This gives her more time to give Kathy a shower and then gives me time to get away. I was hoping to go shopping at Aldi’s to stock up on stuff. Things got off to a rocky start. But they ended… Read more →