CAREGIVING: We are expecting a snow storm for Thanksgiving. I’ve given emergency planning a lot of thought lately. I thought it might be useful to think out loud about it: What to do with a bed-bound Huntington’s patient during an emergency. Getting Advice The biggest worry I have during the winter is a power outage. Without power there will be no heat, no water… Read more →
Category: Caregiving
Infographic: Huntington’s Disease
I wanted to share a good infographic produced by Lundbeck, one of the pharmaceutical companies working on treatments for Huntington’s Disease. I am not sure what the log has to do with it. Read more →
Which Came First: the Chicken or the Dryer?
CAREGIVING: On Wednesday I received a call that the new clothes dryer would be delivered between 3 and 7 pm. The excitement was building. The laundry was building. Kathy’s clothes and bed pads were hanging all over the place trying to dry. Around 4 pm in the afternoon I received another robo-call saying the truck should be there in 20… Read more →
Friday: I can’t complain
LIFE & CAREGIVING: Today, was one of those days. But I can’t complain. The clothes dryer died: I suppose it was due. We bought it in 1994. So, I can’t complain. I ran to the Depot and bought the same basic Whirlpool we had. Looks more streamlined, but it is the same basic box. Made in the USA, of all places. Unfortunately, they can’t deliver… Read more →
Feeding Tube: Fixing the Plumbing
CAREGIVING: Kathy has had her PEG tube (feeding tube) since early June. You can read about the decision to put it in; and the ethics to use one elsewhere in the blog. For the most part it works pretty well; except when it doesn’t. It is leaking at the fitting where everything gets pumped in. At one point I worried that the… Read more →
Busy Friday
CAREGIVING: Friday was a busy day. It was Whitney’s first day back from her Arizona baseball vacation. Her father’s team played in a senior baseball tournament. Apparently, the coach left one pitcher in too long (11 walks) and they missed getting into the playoffs by one run. But, she had a lot of fun. As she was leaving Britney arrived to… Read more →
Sunday: More updates
CAREGIVING: I am starting this late Sunday night. Kathy had a less than perfect weekend. There were enough coughing spells and suctioning episodes, that I didn’t feel comfortable being too far away. I also assumed that the leaves aren’t going anywhere. They can wait. On Saturday, Kathy was actually coughing hard enough for some blood to come up. The first time… Read more →