MUSIC: The benefit concert that Mike Orlen and my friends are giving for Kathy and our UConn Huntington’s Program will be web broadcast on a site called ConcertWindow.com. If you can’t make it to the actual concert in Amherst this Sunday, 7pm you can watch and hopefully donate online. The broadcast is “pay what you wish”. The new flyer about the show with… Read more →
Tag: UConn
A Benefit Concert for Kathy and the Huntington’s Clinic at UConn
MUSIC: I am humbled and grateful. Some of my musical friends are giving a concert to benefit Kathy and the Huntington’s Disease Program at UConn Health Center. That is where Kathy gets treated for HD (and I get support). The concert will be Sunday, July 27th at the Nacul Center, 592 Main Street, in Amherst, MA. Bruce King is a wonderful singer and guitarist. He holds the distinction… Read more →
New wheels
CAREGIVING: On Thursday Bob our new physical therapist came with a wheelchair expert named John to assess and hopefully get us a new chair for Kathy. The idea will be to convince Medicare, MassHealth (Medicaid) and probably Health New England (her Medicare Advantage plan) that it is a necessary piece of equipment due to her Huntington’s Disease. Best case is… Read more →
Experimenting with Drugs
CAREGIVING: I have been experimenting with drugs. No, I’m not taking recreational drugs. I’ve been attempting to dial back some of the meds I have been giving Kathy for her Huntington’s and her blood pressure. My concern and actually the concern of her doctors is that her blood pressure may be getting too low. I’m thinking (always dangerous, I know)… Read more →
Visit to the Huntington’s clinic
CAREGIVING: Wednesday I took Kathy down to the UConn Health Center for her six month checkup at the Huntington’s Clinic. (This is the same clinic I donate all of my proceeds from music downloads hint/hint/hint). Originally our appointment was to be at 2 pm but I got them to move it to noon. I figured we could avoid some of… Read more →
A visit from the copyright police
MUSIC: I admit it. I have always been paranoid about recording “covers” of other people’s songs. Unless you have permission in writing; or have paid a licensing fee to do them; there is always a chance that someone will complain. Or worse. The copyright police will come for you. That is one good reason why I write my own songs.… Read more →
The Way It Is
CAREGIVING: This afternoon Jennifer from Greater Springfield Senior Services (GSSSI) visited to talk about how things were going and to line up more help for Kathy. I had just hung up the phone with Louis & Clark, the medical supply firm that had provided the transport chair. They were having trouble getting reimbursed from Health New England (Kathy’s Medicare Advantage insurance)… Read more →