Friday, October 16, 2015 Last Friday was the day I had to go to the funeral home to sign some forms. I decided to take Marty with me so I could give him a few little walks and I wanted to stop by the Wilbraham Library on my way home to ask about having Kathy’s celebration there. The funeral home… Read more →
Tag: humor
Things are swell.
CAREGIVING: The goal with our hospice care is to keep Kathy comfortable. Hospice care (from a health care cost standpoint) is limited to Kathy’s actual “diagnosis” of end stage Huntington’s Disease. When something else pops up (blood pressure, infections etc.) there are “conversations” about what to do next. Or not. They will support whatever decision I make. But I have to make decisions on how far to… Read more →
H is for hospice (and hump day)
CAREGIVING: The roller-coaster of care-giving continues on its merry way. I put off posting because Kathy was going to start getting hospice services a week or two ago. At least I thought so. I want Kathy to be comfortable. Apparently, they need to have a prognosis of six months before you start hospice. My guess is that it has something to do with money: insurance or MediCare. If you… Read more →
Gratitude to my friends
CAREGIVING & MUSIC: I wish I could reach out and give a virtual hug to everyone who is supporting us during our time with Huntington’s Disease. We had a very very successful benefit concert in Amherst thanks to the organizational efforts of Mike and Chris Orlen. Volunteers and donors from all over the Pioneer Valley pitched in to help. I… Read more →
and Two Steps Back
CAREGIVING: It’s Friday night, and I finally can sit and try to get caught up a bit. Kathy is asleep — breathing well with the occasional cough. Marty is on his couch. I’m on mine. It is thundering out and pouring rain. One of the main reasons I feel a need to write this stuff down is that time flies – whether you… Read more →
If It’s Wednesday This Must Be…
CAREGIVING: I have actually been trying to write a song but this will be a tale about health aides. The word tale slipped out there but I think I’ll leave it since it beats me how all this state health assistance works. I keep thinking I understand the process and the terminology and rules but I only know what I… Read more →
If you should fall, I’ll be there – Floor
CAREGIVING: Falls are one of the greatest risks with Huntington’s Disease. Kathy’s balance was actually pretty decent up until a few months ago. Now her legs are getting rigid and her feet don’t seem to want to move – let alone take an actual step. Sunday and Monday she had some spills that were really my fault. The biggest problem seems… Read more →