CAREGIVING: It has been over a week and a half since my last blurb and a lot has happened. A lot is the same too. Random falls and close calls. Design work and lots of laundry. Last Monday Hope came to give Kathy her shower. We were waiting for a nurse from the same agency to come and create a… Read more →
Category: Caregiving
Hope
CAREGIVING: One of our new aides, Hope came this morning. Monday was her first visit to give Kathy a shower and get her dressed. Today, she stayed for three hours of companion care and did some cleaning after getting Kathy ready. She sat with Kathy while I worked on a newsletter project in my actual office, upstairs. It was nice… Read more →
April Falls Day
CAREGIVING: Well, we had another episode of buckling today. I thought I had it all figured out: how to get Kathy out into the car and back into the house using the wheelchair. We had to go pick up some prescriptions at Stop & Shop and since it was really nice out I thought I would go today and bring… Read more →
Update: Drug experiments
A quick update on my ‘pharmaceutical research’ from last night’s post: Today I tried skipping the Zanaflex (muscle-relaxant) to see if Kathy did a little better. She was not as weak and seemed to be able to follow my lead and moved pretty well. I was unable to get a blood pressure reading though because her arms and hands were… Read more →
Experimenting with Drugs
CAREGIVING: I have been experimenting with drugs. No, I’m not taking recreational drugs. I’ve been attempting to dial back some of the meds I have been giving Kathy for her Huntington’s and her blood pressure. My concern and actually the concern of her doctors is that her blood pressure may be getting too low. I’m thinking (always dangerous, I know)… Read more →
Shopping: Peapod for Caregivers
CAREGIVING: I would like to make grocery shopping less of a pain in the ass. There I said it. I actually like shopping and meal planning and cooking. But it is a major production when Kathy goes with me. Getting a Huntington’s disease patient back into the house when she is exhausted and bent over is pretty scary. I decided to… Read more →
Visit to the Huntington’s clinic
CAREGIVING: Wednesday I took Kathy down to the UConn Health Center for her six month checkup at the Huntington’s Clinic. (This is the same clinic I donate all of my proceeds from music downloads hint/hint/hint). Originally our appointment was to be at 2 pm but I got them to move it to noon. I figured we could avoid some of… Read more →