CAREGIVING, MUSIC & LIFE: I started thinking about this song some time after Kathy passed away. At the caregivers support group at UConn, I mentioned how I wish I could “do something.” I was thinking I could be trained to run a support group or advise people. Now I realize that counseling should be done by counselors – with professional training.… Read more →
Category: Caregiving
The “How I’m feeling” post
Writing. There are a number of reasons to keep a journal or to write stuff down. In the beginning, it was simply to remember what or when something happened. In my case, it really helps me process complicated feelings and to remember what I/we went through. When I stopped writing regularly I found myself being in a crappy mood every once… Read more →
Hello
Hello and Welcome. This blog started out a few years ago as a journal. It helped me process what was going on in my life as a caregiver, artist, and as a musician. My personal goal was to be able to remember what happened, when. As my wife, Kathy declined from Huntington’s Disease, I wanted to share what was happening… Read more →
Camera ghosts on Valentine’s Day
The Big Freeze. I spent a good part of Valentines Day thawing out my pipes. I am referring to my house plumbing, not my human plumbing. But, It was so cold out that when I had to go out to get Marty some dog food I had to keep on checking whether my fly was down. Maybe I am exaggerating… Read more →
Reno / Part 3: Visiting Kathy’s sister LouAnn
A few days before I returned home I used Barbara’s car to visit Kathy’s sister, LouAnn in Grass Valley CA. It is about a two-hour drive over the mountains and past Lake Tahoe. LouAnn has Huntington’s Disease. I almost wrote the phrase ‘just like Kathy.’ But, it’s not the same. While there are a lot of similarities in HD patients,… Read more →
Reno / part 1: Hip hooray
Caregiving: I just got back from Reno on Tuesday, so I am still catching up with stuff. I was there for a week or so to help my sister Barbara recover from hip replacement surgery. There were a few moments when I started to wonder what they replaced it with. (Used parts?) But she is progressing really well, now. I was… Read more →
A new year
LIFE: Well the New Year has come and gone. The Christmas decorations have been put away. The lights are coiled up and put away. I’m making new file folders for receipts and filing the old stuff for taxes. Kathy’s health records and hospice info is in a file box. Sympathy and Christmas cards have been put away. I seem to be… Read more →